The New England
Journal of Medicine recently reported that U.S. Congress legislators made a
petition to the Department of Health and Human services regarding whether a
person with disabilities should receive an organ transplant or even be put on
the list. With over a hundred thousand people on the waiting list for an organ,
it’s safe to say the supply is limited. Some healthcare providers are afraid to
give a person with intellectual/mental disabilities an organ because of the
fear it may be “wasted.” The theory is that the person receiving the organ may
not have the mental capacity to take care of themselves post-op and, thus, the
organ may be rejected. If that is the case, someone who could have taken better
care died while on the waiting list. However, research has shown that children
with intellectual disabilities have the same odds of having a successful
transplant as the children without disabilities. This study did not include
adults, however, and children do have parents, guardians, or caregivers to
ensure the best quality of care. Still, healthcare providers are wary to give
children the transplant if they have a disability. One story became viral of a three-year-old
girl named Amelia Rivera when she was denied a kidney transplant. The
reasoning? She suffered from Wolf-Hirschhorn syndrome that causes severe
intellectual impairment. The internet created a campaign with over fifty
thousand people supporting her and she received the transplant. Other man in his
twenties was denied a heart transplant because he was diagnosed with autism.
Medical professionals are now calling for a review board that can make the
decision if the case is debatable. Personally, I think they should not be
excluded on the waiting list or denied an organ transplant.
Source: http://www.philly.com/philly/health/topics/HealthDay719036_20170125_Should_a_Mental_Disability_Keep_Patients_Off_Organ_Transplant_Lists_.html
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