Wednesday, January 16, 2019

Quiz Jan 17

Our first daily quiz includes questions about keeping score (& hence is a little longer than usual), which we'll do every day to track and inspire participation. Write your answers down on a sheet of paper and bring it with you to class. Also post your own quiz & discussion questions, comments, relevant links etc.

1. Name two of the ways you can earn a base in our class. (See "course requirements" & other info in the sidebar & on the syllabus)

2. How many bases must you earn, for each run you claim on the daily scorecard?

3. How do you earn your first base in each class?

4. Can you earn bases from the daily quiz if you're not present?

5. How can you earn bases on days when you're not present?

6. What should you write in your daily personal log?

7. Suppose you came to class one day, turned on the computer/projector and opened the CoPhi site, had 3 correct answers on the daily quiz, and had posted a comment, a discussion question,  and an alternate quiz question before class. How many runs would you claim in your personal log and on the scorecard that day?

8. How many bases do you get for posting a short, relevant weekly essay of at least 250 words?

9. What are Dr. Oliver's office hours? Where is his office? What is his email address?
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1.(T/F) Campbell's examples of bioethical questions include whether health care professionals must meet higher standards than businesspeople, the ethics of longevity via pharmacology, designer babies, human/animal hybrids, state paternalism, euthanasia, and environmental ethics.

2. Bioethics just means _______.

3. The _________ required that 'The health of my patient must be my first consideration.' (Hippocratic Oath, Geneva Code, British Medical Association, International Association of Bioethics)

4. What 40-year U.S. study denied information and treatment to its subjects?

5. What did Ivan Ilich warn about in Medical Nemesis?

6. Bioethics has expanded its focus from an originally narrower interest in what relationship?

7. Bioethics has broken free of what mentality?

8. (T/F) Campbell thinks caveat emptor is a good principle for governing the contractual clinical encounter between doctor and patient.

9. Do descriptive claims settle evaluative issues?

10. Name a bioethical website Campbell recommends.
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*Some possible Discussion Questions (DQs) - after the quiz we'll select one to kick off a brief class discussion followed by longer group discussion, which some of us may wish to do peripatetically, in the corridors if not out in the chill:

  • Are there any important bioethical issues you think Campbell has neglected to mention in ch.1? 
  • What do you see as the connection between bioethical and environmental issues? 
  • Do you agree that we have "over-medicalized" human experience? 
  • Is there anything wrong with "medical tourism"? 
  • Do you agree that the doctor-patient relationship is NOT "a straightforward provider-consumer relationship? Why or why not? 
  • Etc. etc. - submit your DQ suggestions in "comments" below.

As noted in class:

“When Breath Becomes Air,” Paul Kalanithi’s memoir of his final years as he faced lung cancer at age 37, was published posthumously, in 2016, to critical acclaim and commercial success. “The Bright Hour,” Nina Riggs’s memoir of her final years as she faced breast cancer at age 39, was published posthumously, in 2017, to critical acclaim and commercial success. The two books were mentioned together in numerous reviews, lists and conversations.

Perhaps less inevitable was that the late authors’ spouses would end up together, too.

“I’m still surprised,” said Lucy Kalanithi of her relationship with Nina Riggs’s widower, John Duberstein. “I’m surprised by how ridiculous it is and how natural it is at the same time.”

Sitting across the kitchen table from Lucy last week at her home, John agreed. “Everything seemed almost bizarrely to fit,” he said. “It was kind of stunning.”

The story of Lucy Kalanithi and John Duberstein is both unlikely and destined, the stuff of a rom-com. It begins, tragically, on a deathbed... (WaPo, continues)
==
GLOBAL HEALTH
How the Response to Zika Failed Millions

One year after the W.H.O. declared a public health emergency, experts reflect on the response to the virus and find many aspects wanting.
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The Stem-Cell Revolution Is Coming — Slowly
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Health Law Repeal Could Cost 18 Million Their Insurance, Study Finds

The Congressional Budget Office said 18 million people would lose their insurance in the first year, with that number and costs rising over 10 years.
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Physician Aid in Dying Gains Acceptance in the U.S.
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In Cancer Trials, Minorities Face Extra Hurdles
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The G.O.P.’s Health Care Death Spiral

A repeal-and-delay of Obamacare would be a “total disaster” for the individual insurance market.
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Fear Spurs Support for Health Law as Republicans Work to Repeal It

Thousands of people are speaking out in support of the Affordable Care Act by sharing testimonials with Congress and holding rallies across the country.

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A Deliberate End
Judith Katherine Dunning had been waiting anxiously for California to adopt legislation that would make it legal for her to end her life. The cancer in her brain was progressing despite several rounds of treatment. At 68, she spent...
==
The Conversation Placebo
Communication between doctor and patient is one of the best treatment tools we have. And we’re not using it.

17 comments:

  1. Do you agree that we have "over-medicalized" human experience?

    If the means are available, I believe that one should have the right to choose how they wish to proceed with their own health. However, I would agree with the idea of an over-medicalized human experience because, perhaps, such a process has made us too reliant on medicine and medical practices in general. Perhaps we also have focused more on the idea that we can achieve something medically, but do not focus on if we ought to do it. We sometimes treat such practices as products, as something to buy that will somehow make our life better or easier. Some practices that we would treat as such are no more than simply preferences based on culture or society and are not necessary for one’s health.

    Is there anything wrong with "medical tourism"?

    In most cases, I do not believe it is morally wrong. In some cases, a certain medical practice is banned for cultural and societal reasons. However, the issue lies in the fact that some practices may not be safe in other countries. Such a practice could be harmful to the individual(s) involved. However, this is not morally wrong on the behalf of those who are medical tourists, for they accepted the consequences when they decided to go to another country to receive the treatment.

    ReplyDelete
    Replies
    1. Safety is an important concern in Medical Tourism. I feel one of the major reasons why people travel to foreign places, whether safe or not, is often the affordability of medical care. The cost if medicine in the United States is extremely high and often individuals who are looking for affordable procedures must travel abroad.

      I have read about a few different cases of foreign surgeons and doctors who received certifications and educations in their own country who are unable to practice in the United States. Is it fair for us to determine who is a medical professional and whether the western way of medicine is the best way?

      https://www.nytimes.com/2013/08/12/business/economy/long-slog-for-foreign-doctors-to-practice-in-us.html

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    2. Too bad we didn't come across this in class. It would have added an interesting component to our discussion of medical tourism.

      Sen. Rand Paul Is Having Surgery in Canada, Where Healthcare Is Publicly Funded

      http://fortune.com/2019/01/14/rand-paul-surgery-canada/

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  2. Hi Chelsea,

    I enjoyed reading your post and wanted to comment regarding medical tourism. Did anyone else follow the story of baby Charlie Gard from the UK last year? Here's a link to several articles:

    https://www.theguardian.com/law/2017/may/31/british-parents-supreme-court-sending-sick-son-charlie-gard-to-us

    As a parent, I can't even begin to fathom the hardships this family endured in trying to save their son. The question, "what will you do for your child?", was on full display for the world to see.

    Baby Charlie Gard was diagnosed with mitochondrial disease, a condition that causes progressive muscle weakness and brain damage. Coincidentally, this is an exact topic in which our Bioethics book was revised on during its second edition (see Preface to the Second Edition, Bioethics the basics).

    Ultimately, the ethics question presented to the multiple courts was the treatment being presented by the US team of Doctors in the best interest for Charlie or for Science?

    As a parent, I would do all that I can for my nine-month old son, but when is it enough. If you were in this situation what would you do?

    Ana

    ReplyDelete
  3. Extra questions:
    1. T/F Concerns about how doctors treat their patients goes back to ancient times.
    2. With the advent of ______, it became necessary to re-define death or brain death?
    3. One major influence on contemporary bioethics has been the exponential development of mapping what?
    4. What is the IAB?
    5. Why is it better for healthcare providers to be covenantal rather than contractual?
    6. What did Eliot Freidson argue in Profession of Medicine as a critique of American medicine?
    7. The main method of bioethics has to be concerned with what, not just a description of who thinks, what or social factors?
    8. What are the four aspects of how bioethics should be applied
    9. T/F Many individuals prefer iPSCs as opposed to ESC.
    10. What is persistent negative state?
    11. The Nazi war crime tribunal is an example of what?
    12. T/F The ability to keep alive on machines means there is a quality of a patient’s life was improved or maintained.
    13. What is the WHO?
    14. What is one of the objectives of the IAB constitution?
    15. T/F The law on help with some reformations with bioethical issues.
    16. What is the main difference between bioethics and medical law?
    17. T/F Healthcare is the same as business: the customer is always right.
    18. The important factor of professional education is?
    19. T/F Debating is a key factor in bioethics.
    20. The explanation and assessing a range of moral theories in attempt to show how moral claims are justified is a discipline known as what?

    ReplyDelete
    Replies
    1. 1. T
      2. Human life
      3. Life or death
      4. Interactive Adverstising Burea
      5. Because it is what they supposed to do
      6. That it is different than the other ones
      7. Do what is right
      8. Health as a public good, the genome revolution, globalization
      9.T
      10. When you are only focused on negative
      11. The terribly time that has happened to people and something to look back at and learn from it
      12. F
      13.Research ethics review committee
      14. to do what is right
      15. T
      16. bioethics focuses on morals
      17. T
      18. to serve other people
      19. F
      20. Justification

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  4. This comment has been removed by the author.

    ReplyDelete
  5. One aspect of ethics that is important to me is the ability of a person to choose when they die. I would not equate this to assisted suicide but more of an absence of medical intervention. I am currently employed in a hospital where I see countless individuals who have chosen the right to not be resuscitated when they die.

    Unfortunately, this right ends when you are no longer able to make decisions on your own, even if the individual made the decision with their mind fully intact. As soon as the person loses that mind, family members can reverse the decision that was made as long as they are the power of attorney. When emotions are high, family members often choose to keep their dying family member alive.

    A question I would ask is if a dying individual has a written document that states they do not want to be revived, should the family have the right to change their status from do not resuscitate? Often times, an individuals suffering is prolonged for our own comforts. If a person who did not want to be resuscitated is brought back, they sometimes have anger and resentment that they were not allowed to die.

    ReplyDelete
    Replies
    1. Good point. There is an element of selfishness on the part of family members who choose to override or ignore a loved one's DNR instructions/preferences (explicit or not), even if the motivation always feels loving and benevolent.

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  6. Quiz Questions:
    1. What crime is committed, in accordance with the Universal Decleration of Bioethics and Human Rights, when an experiment or treatment is conducted on an individual(s), who is able to make his or her own decision, without his or her consent?
    2. The IAB requires that no more than _______ board members can be from one country.
    3. What ethical dilemma did Campbell mention in reference to conjoined twins?

    ReplyDelete
    Replies
    1. 1. Erg, breach of consent? Page 10 paragraph 2?
      2. 3 members
      3. Separation of conjoined twins could lead to the death of one

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  7. Posted for Kevin Burge

    [Hey Chelsea! Building off of what you brought up about medical tourism, I also believe that there is nothing morally wrong with it; humans ultimately chase survival, and if migration is what is necessary for such, why would we not do so? Humans have traveled great distances across the continent for the purpose of survival in the history of humanity, and with the eases of transportation brought about by modern times, today should be no exception.

    I feel like medical tourism is not ethically wrong, but the necessity itself of medical tourism is unethical. For us to be, in fact, a unified species across our planet, all should be able to have sufficient access to effective medical treatment, without the profiteering that is present in this day in age. Whether this is realistically achievable, regarding the currently thorough implementation of economy on our planet, and whether or not it would be worth pursuing is the real matter of ethics in my opinion.]



    [https://itmunch.com/future-elon-musks-neuralink/

    I came across this article tonight, which I thought was particularly interesting. I've always seen Elon Musk as a bit of a far-fetched visionary, but with the work he has done with SpaceX by making leaps and bounds towards space exploration can't go unnoticed. He has truly done some remarkable things. That being said, I'm fairly skeptical towards this recently introduced "Neuralink" technology.

    I was curious, what do you guys think about this? Those of you who are studying medicine and know far more than I do, would achieving a digital symbiosis between a computer and our brains be realistically possible? If so, would it be ethical to turn willing participants of our species into a sort of hive-mind? Off of that, if there is a price involved (which there more than likely will be), would an implementation of this be ethical in the first place? This makes me picture a world where the rich will become geniuses and those who cannot afford to tap into the limitless intelligence will be thrown by the wayside. That seems extremely polarizing with respect to our species, and not ethical in the slightest.]

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    Replies
    1. Very interesting, the "hive mind" concept. Is resistance futile? Or is the prospect overblown? For that matter, is the Internet already turning the planet into a hive mind of sorts? Is individual responsibility and the very idea of ethical autonomy at risk? I'd love to hear more about what computer-brain "symbiosis" might look like? And speaking (as I was the other day) of Alan Watts, have you seen "Her"? What do you think of Alan 2.0? (SPOILER alert, tell me if I should say no more of this in class.)

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    2. FYI, some of the early comments above are "legacy" from last year. No reason why we can't still converse in virtual space with those old ghosts, however.

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  8. At the very beginning of the chapter, I read a question proposed by Campbell that I would be interested in hearing other people's views on and having a discussion over it. Should mercy killing be made legal?

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    Replies
    1. "Euthanasia is illegal in most of the United States. Assisted suicide/assisted death is legal in Washington DC and the states of California, Colorado, Oregon, Vermont, Hawaii, and Washington; its status is disputed in Montana." Is it ok, do you think, that this issue be one for states to decide?

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    2. And in other countries: https://www.theguardian.com/society/2014/jul/17/euthanasia-assisted-suicide-laws-world

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